Equitable Design
Local
and international issues and barriers are associated with data sharing.
Institutions and publishers revisit publishing requirements on a
continual basis to address these concerns. Therefore, revisiting
publishing requirements is considered a continuous process improvement
strategy to incorporate agreements on data sharing between
organizations.
Read this article and take notes on the ethical
concerns and suggestions listed in each case study. What actions can you
recommend to an employer to mitigate obstacles and issues associated
with data sharing?
List abbreviations
ACS - Antenatal Corticorticosteroid
CDISC - Clinical Data Interchange Standards Consortium
CONABIOS - National Council on Bioethics in Health
EDCTP - European and Developing Countries Clinical Trial Partnership
IDDO - Infectious Diseases Data Observatory
MESCyT - Ministry of Higher Education, Science and Technology
MNH - Maternal & Newborn Health
MoH - Ministry of Health
NIH- National Institutes of Health
NICHD- National institute of Child Health and Human Development
N-DASH- NICHD Data and Specimen Hub
REC – Research Ethics Committees
TDR - Special Programme for Research and Training in Tropical Diseases hosted at the World Health Organization, and sponsored by the United Nations Children's Fund, the United Nations Development Programme, and the World Bank and WHO.
WHO - World Health Organisation
WWARN - WorldWide Antimalarial Resistance Network